Shalini Kedia started the Fragile X Society in India in the year 2003. It was conceived to be a support system for families who have children affected with Fragile X Syndrome, an inherited condition that can cause Intellectual Disability and Autism. She is also actively involved in spreading awareness on Fragile X in India. She is a TED X speaker and co -author of guidelines issued for Fragile in India by the Indian Academy of Paediatrics. This course module is a culmination of her experiences with over 12,500 families.