Training Direct Care Workers dealing with Stroke Survivors
- No formal prerequisites. Basic notions of Care are recommended.
Stroke is a leading cause of death and disability worldwide and often requires long-term rehabilitation. Stroke causes profound disruptions in stroke survivors’ independence, autonomy, social life, and relationships. Approximately 80% of all stroke survivors are discharged to their homes following hospital admission. A significant number have disabilities so severe that they are dependent on practical and emotional help and support.
Informal carers are spouses and other family members who play a significant supporting role in the rehabilitation process after stroke. Direct care workers are carers employed by the family to take care of the stroke survivor. Both groups of carers have an essential role in providing personal care to individuals with stroke-related disabilities (e.g., bathing, hygiene, feeding), practical help (e.g., mobility, socialization, health education). Moreover, they give support to other health professionals in various activities (e.g., giving medications).
The daily working environments in which informal carers and direct care workers assist stroke survivors are highly demanding. Carers carry out most essential tasks, usually with high physical and emotional burden and with little specific training. The most commonly experienced challenge among carers is finding sufficient information on caring for a stroke survivor.
This course will provide timely, reliable, and sound information and training to informal carers and direct care workers that will help enhance service provision and improve the stroke survivors’ and carers’ experiences and well-being.
Who this course is for:
- Informal Carers and Care Workers
I'm currently Professor at the Computer Eng. Dep. of the Engineering School of the Porto Polytechnic (ISEP). I'm also Director of Virtual Campus Lda, an SME dedicated to Technology Enhanced Learning and Serious Games.
I have a PhD (2001) in Technologies and Information Systems from the University of Minho, focusing in the use of e-learning in Higher Education.
As professor, I've lectured more than 20 different courses on Algorithms, Programming, Data Structures, E-Learning and Multimedia. Currently I'm lecturing Serious Games Design and Development and Multimedia Application Development. I was responsible for planning and developing the syllabuses and materials for most of these courses.
I started my research career in 1988 at INESC in the Computer Graphics Group. In 1996, I focused in Technology Enhanced Learning while doing my PhD at the University of Minho. From 2005 to 2014, I was Scientific Coordinator of GILT R&D (Games, Interaction and Learning Technologies). I've directed eight PhD and 40 MSc theses and authored over 200 publications and communications, including more than ten books (as author and editor). I coordinated 16 national and European projects and participated in more than 20 other projects. I worked as an expert for the European Commission and associated agencies in the scope of the Socrates-ODL, Minerva, E-Learning, E-Contents Plus, Lifelong Learning and Erasmus+ programmes.
On the management side, I directed the Distance Education Unit of the Porto Polytechnic from 1997 until 2000. From 2001 until 2005 I was E-Learning Director of ISEP and served as Dean of the Computer Eng. Dep. between 2003 and 2005. Between 2011 and 2013 I was President of the Portuguese Chapter of the IEEE Education Society.
Currently, I'm directing a company dedicated to the production of Serious Games and Technology-based Educational contents and applications.
I am Speech and Language Pathologist and studied at the University of Vienna. I work as a scientific collaborator at the University of Technology in Limassol, Cyprus. I am born and raised in Würzburg, Germany. Currently I am doing my PhD about bilingualism and its impact on executive functions and working memory at the Cyprus University of Technology.
Marina is a rehabilitation clinician and researcher specialising in Stroke Aphasia. She is an expert adult neuroscientist at the Rehabilitation Sciences Department of the Cyprus University of Technology. Marina qualified from City University London and has been practising in Neurological Rehabilitation for the past 18 years. She studies for her PhD at the Department of Neurology at the University of Fribourg in Switzerland, under the supervision of Professor Jean-Marie Annoni MD. In 2009, Marina established the Cyprus Stroke Association. She is currently the President of the Board, the Secretary of the Board of the Stroke Alliance for Europe, and a proud member of the ‘Future Stroke Leaders Program’ of the World Stroke Organization. Marina received an achievement award in fighting stroke from SAFE in 2018. In 2020 Marina received the prestigious scholarship of the A.G. Leventis Foundation to support her PhD. She is also working on 3 Stroke related studies: the ASPIRE for post-stroke aphasia, the i-TRAIN for direct care workers and the ACESO to improve patient outcomes. Her main interests are rehabilitation, quality of life and patient and public involvement in stroke research.
EDUCATION: Medical doctor , Neurologist, PRM doctor, PhD in Neurosciences
JOB POSITION: Chair of Physical Medicine and Rehabilitation (PRM), at “Politecnica delle Marche” University -
Director of Master Course for Rehabilitation professionals
Head physician at Neurorehabilitation Clinic, United Hospitals of Ancona
2016-2020: President of the UEMS Board for PRM
2014 - to date: National Manager for Italy of the UEMS PRM Board
2016 - to date : Coordinator of the Special Interest Scientific Committee for the Rehabilitation of people with Movement disorders, in the European Society ofPRM
2020-to date: Coordinator of the Subcommittee for PRM Core curriculum development in the International Society of PRM
RESEARCH ACTIVITY: More than 200 papers (around 140 puyblished on indexed journals, more than 100 published in national journals, 20 book chapters, one book) , around 300 contributions to national and international conferences
Principal investigator of 27 international multicenter clinical trials. Invited speaker in more than 300 national conferences and around 80 international events
Epidemiology of neurologic and oncological disease–related disability.
Effectiveness of stroke rehabilitation through action observation, virtual reality, functional electrical stimulation and non-invasive cortical stimulation
Effectiveness of deep brain stimulation in Parkinson’s disease and Epilepsy.
Instrumental assessment of posture and gait in stroke subjects and Parkinson’s disease patients
Effectiveness of spasticity treatment using botulinum toxin
Neural correlates of financial decisions
Epidemiology of COVID-19–related disability and rehabilitation needs
Deputy Chief Editor of the European Journal of Physical Rehabilitation Medicine
Member of the Editorial Board of the Journal of Rehabilitation Medicine
Arianna Poli, PhD, is Postdoc researcher at the Division Ageing and Social Change, Linköping University, Sweden. Her research lies at the intersection of digitalisation, ageing, (in)equality. She investigates the impact of digital technologies among older people in different domains, such as working life, healthcare, service provision. She is actively involved in several scientific networks in the field of technology and ageing. She is member and newsletter editor of the Socio-Gerontechnology network and Management Committee member for Sweden within the NET4AGE-Friendly COST Action.
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Dr Pampoulou is a Speech and Language Therapist and an Assistive Technology Specialist. Dr Pampoulou’s research interests directly relate to the field of Augmentative and Alternative Communication (AAC). Specifically, her focus is on the quality of AAC assessment and intervention outcomes as well as AAC systems acceptance. One of her current pioneering research projects is the development of an assessment tool for the selection of the most appropriate corpus/es of graphic symbols for AAC experts to use during the assessment process. It is Dr Pampoulou’s aspiration that through her research work she will continue supporting people with complex communication needs in order to communicate their thoughts and ideas effectively, thus increasing their chances of reaching their maximum potential. As part of her contribution to the wider society, she has run a number of seminars and workshops in which she has been training both professionals and parents on issues concerning the AAC field.
Dementia is one of the most prevalent and burdensome diseases in older age. By the year 2030, estimates suggest that there will be 74.7 million people with different forms of dementia worldwide. There is no cure for dementia: drugs only address the symptoms of the disease and non-pharmaceutical interventions are continuously tested and updated to improve patients’ quality of life: from interventions to increase of communication skills, agitation and stress reduction, and use of new technology.
The value of disseminating evidence on these interventions is immeasurable, but surprisingly this knowledge is often not available to care staff.
The iDO project aims at diminishing this existing gap by designing and developing an effective training package in close collaboration with people with dementia and their caregivers in hopes that this will promote the acquisition of skills by direct-care workers. This will be achieved by conducting different interviews with caregivers, patients, but also health professionals and then transforming it into an online massive course. The project will also develop and include a serious-game where people will be able to apply their gained knowledge on the different topics related with dementia.
Rytis Maskeliunas currently works as Professor, at the Faculty of Informatics, Kaunas University of Technology. Rytis does research in next generation Collaborative Intelligence and Multimodal Human-Machine signal processing. He is an (co)author of more than 200 research papers on the topic and has participated in more than 20 research themes and projects related. He has supervised 6 PHD students working in this topic.
Tech4Care is an innovative start up founded in Ancona (Italy) in December 2015 thanks to the initiative of a group of health care researchers. The ultimate goal of the company is to transfer advanced scientific knowledge into new products, services and good practices. Tech4Care’s core business concerns the development, testing and commercialization of technological solutions based on mobile health (mHealth), artificial intelligence(AI), virtual reality (VR) and the Internet-of-Things (IoT). The three internal divisions are: Research and Development(R&D); Social Innovation; and New Media.
Stavroulla Grigoriou is a speech and language therapists who graduated from the Department of Rehabilitation Science at the Cyprus University of Technology, with MSc in Cognitive Neurorehabilitation from the same department. Since 2019, she is working as a private clinician, providing assessment and therapy plans, both in children and adults. She has been involved at the Erasmus + program titled: «i-Train, Mobile Digital Training for Direct Care Workers Dealing with Stroke Survivors” and ASPIRE project, specifically in “Constraint Induced Language Therapy (CILT)”. She is a member of Cyprus Association of Registered Speech-Language Pathologists, Augmentative and Alternative Communication Special Interest Group and Cyprus Stroke Association. Her main clinical and research interests lie in the assessment and intervention of communication disorders of adults with acquired neurological disorders and neurodegenerative diseases, using Augmentative and Alternative Communication.