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Retinitis Pigmentosa 101
1 students

Retinitis Pigmentosa 101

How to Understand, Accept, and Live Your Best Life with Retinitis Pigmentosa
Created byHowExpert
Last updated 9/2020
English

What you'll learn

  • Retinitis Pigmentosa
  • Retinitis Pigmentosa Tips
  • Retinitis Pigmentosa Lessons
  • Retinitis Pigmentosa Basics

Course content

1 section • 10 lectures • 2h 9m total length

  • Welcome0:16

    Explore how to understand, accept, and live your best life with retinitis pigmentosa, presented by expert Katie McCoy and narrated by Sara Margrave.

  • Introduction4:55

    Katie shares tips and tricks for living with retinitis pigmentosa, guiding parents and individuals through independence, college, work, dating, and the choice of a guide dog.

  • Part 1 - How to Deal with Your Child’s Visual Impairment19:55

    Empower parents to support children with visual impairment due to retinitis pigmentosa by fostering independence, addressing bullying, and enabling mobility and access to assistive resources.

  • Part 2 - Blending in With the Crowd16:31

    Blend in at school by shaping your look, building confidence, joining clubs, and using a cane and Braille, while choosing kindness to foster support.

  • Part 3 - We’re Going to College!15:58

    Learn practical strategies for navigating college with retinitis pigmentosa, including campus orientation, disability services, classroom accommodations, and building a social life while staying safe.

  • Part 4 - How to Navigate the Work Force12:52

    Learn how to navigate the workforce as a visually impaired professional. Get qualified, disclose your eyesight, and use resources to go above and beyond.

  • Part 5 - How to Navigate Dating12:54

    Learn practical strategies for dating with a visual impairment, including communicating your eyesight needs, choosing accessible dating environments, and staying safe with apps and transportation.

  • Part 6 - How to Get A Guide Dog20:58

    Decide you are ready for a guide dog, explore the 14 accredited U.S. schools (Southeastern Guide Dogs featured), apply, train, and bond for safer, confident navigation at home and beyond.

  • Part 7 - How to Learn Some Blind People Hacks13:58

    Learn practical hacks for living with visual impairment, from dining in the dark and orientation mobility to using apps like Specular, Seeing AI, and Color ID for daily tasks.

  • Part 8 - Conclusion10:55

    Find practical tips to live well with retinitis pigmentosa, embrace adaptation, and access resources, support networks, and expert guidance from retina specialists and adaptive technology.

Requirements

  • No experience necessary - All levels welcome - Beginners, Intermediate, & Advanced

Description

Are you someone who has been diagnosed with Retinitis Pigmentosa or a parent who has recently learned that your child is losing their vision? Then this course might just be for you. In this book, you will learn:

• How to deal with your child’s vision loss. Parenting is already difficult but this course will help you learn fundamental lessons to pass on to your child as well as practical advice on how to help your child learn the skills they need to live independently.

• How to deal with school, bullies, and make it through college. Bullies plague many children but living with a disability can make that bullying so much worse but learning skills that can help you avoid the bullies and make it through your first taste of independence safely and with confidence can make all the difference.

• How to live independently from getting a job to dating to practical skills you can use in your everyday life. This book can help you.

• How to get a guide dog. One of the most life-changing things a visually impaired person can do is get a guide dog. This book will walk you through how to get a guide dog and how that dog will change your life.

If you’re tired of struggling with your vision loss, Retinitis Pigmentosa 101 will help you find the joy in life again along with showing you practical skills you need to function in your everyday life.


Who this course is for:

  • People with Retinitis Pigmentosa
  • People who want to learn about Retinitis Pigmentosa

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